Patient voices: An analysis of patients’ information-based priorities and needs
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This study, titled “Patient Voices” is a meta-analysis of the anonymised content of patient email enquiries (received by Stem Cells Australia between 2012 and 2016) and will seek to better understand what those who are actively seeking information about stem cell treatments want to know. Information-based initiatives, such as EuroStemCell and Stem Cells Australia, already seek to support informed decision making by patients considering stem cell-based interventions, however, to-date our understandings of patient and caregiver motivations, priorities and decision-making processes remain fairly limited. This project will make an important empirical contribution to the field.
Dr Claire Tanner, Research Fellow
Dr Jan Barfoot, EuroStemCell, MRC Centre for Regenerative Medicine, University of Edinburgh
Prof Clare Blackburn, EuroStemCell, MRC Centre for Regenerative Medicine, University of Edinburgh
Dr Amy Zarzeczny, School of Public Policy, University of Regina, Saskatchewan, Canada
Stem Cells Australia; EuroStemCell: European Union’s Horizon 2020 research and innovation programme
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